Posted by Dave Dykema - email
CLYDE, OH (WTOL) - Sen. Sherrod Brown plans to talk about pediatric cancer issues with a Clyde family who just lost their daughter to cancer.
Warren and Wendy Brown have been so passionate about getting someone with power to hear their story about childhood cancer they were willing to put their daughter Alexa's dying battle on the air as it was happening, taping it so people everywhere could see just how childhood cancer impacts a family.
"I'm not angry about her being how she was, but I'm angry that she had to get it," says Wendy Brown. "I'm angry that whatever caused it (was) here in Clyde. I'm angry there isn't enough research to get rid of it."
So the Browns are continuing on with "Alexa's Journey," a journey into advocacy for parents all over the country. A journey whose time has come as the National Cancer Institute reports childhood cancer cases have been growing over the past 30 years.
When the announcement came recently that $10 million of Federal money is supposed to be funneled to pediatric cancer research, Warren Brown told Alexa, "This is the first step, honey. And no matter what happens, you may not benefit from this money but there's going to be a generation of kids who do."
That $10 million is just a third of what Congress passed to be allocated, so that is one thing that will be brought up with Sen. Brown Thursday.
"We're going to ask him: 'What are you going to do so see that it gets funded at the level that it was intended to be?'" says Warren.
Warren feels kids sometimes get overlooked in D.C.
"They can't get on the telephone and dial Washington. They can't hop on a plane and go sit in the middle of the rotunda and yell, 'Here I am! I'm bald! Help me!'"
Wendy adds, "Now we have to start concentrating on what we can do so this does not happen to how many other countless children."
Cancer is the leading cause of death by disease among U.S. children. Nearly 11,000 new cases of pediatric cancer were expected in 2008.
WTOL News 11 will be at the meeting with Sen. Brown Thursday.
Copyright 2009 WTOL, a Raycom Media station. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.